Every baby deserves a voice

“A person’s a person, no matter how small.”

Horton, Dr. Seuss

We are the voice for those without a voice. The Foundation for Premature Infants advocates for the right of every premature infant to be cared for in a developmentally supportive way.

Watch the Foundation for Premature Infants video
Making an Impact, No Matter How Small

Watch our founder share the mission behind FPI.

A premature newborn holding a parent's finger A premature baby cradled in a parent's hands A premature baby resting on a parent's hands

Who We Are

Our Purpose

Our Mission

To advocate for the right of all premature infants to be cared for in a developmentally supportive manner.

Our Vision

To ensure that the premature infant Bill of Rights is the standard of care for all babies born prematurely, 24 hours per day, 365 days per year, on all shifts, in every Neonatal Intensive Care Unit throughout the world.

Did You Know?

The Reality of Prematurity

380,000
Premature infants are born each year in the USA
9.8%
Of babies born in the USA are premature
$26B
Spent on premature infant care annually

Common Premature Infant Complications

BPD

Bronchopulmonary Dysplasia, sometimes called chronic lung disease. A child is not born with BPD. It develops as a consequence of prematurity and progressive lung inflammation.

IVH

Intraventricular Hemorrhage is a bleeding of the brain’s ventricular system. This type of hemorrhage is particularly common in infants, especially premature infants or those of very low birth weight (VLBW).

ROP

Retinopathy of Prematurity is a disease of the eye that affects prematurely born babies. All preterm babies are at risk for ROP, and very low birth weight is an additional risk factor. ROP can lead to blindness.

Illustration of a brain at 24 weeks
Brain at 24 weeks
Illustration of a brain at 40 weeks
Brain at 40 weeks

There was a 6% increase in babies born prematurely in the USA from 1998 to 2008. Stevie Wonder lives with Retinopathy of Prematurity.

Our Team

The People Behind FPI

Click any name to read their story.

Resources

Knowledge That Protects the Smallest Patients

Premature Infant Bill of Rights

  1. I have a right to expect that my caregivers’ practices reflect evidence-based best practice.
  2. I have the right to be considered an active participant in my life capable of feeling and responding in all situations.
  3. I will be cared for in a developmentally supportive way and a measurement tool will be used to ensure consistency of my care.
  4. I have the right to an environment that protects my vision and hearing by maintaining sound and light levels within recommended levels.
  5. I will drive my feeding schedule not doctors or nurses and a feeding readiness scale will be used to ensure that I am in control.
  6. My family can visit me at any time.
  7. My family can participate in all activities that involve me.
  8. I can enjoy kangaroo care any time my family wants, emergency situations being the obvious exception.
  9. My care will be standardized across all shifts by all clinical staff that interacts with me.
  10. My care will be clustered so that my precious sleep cycles are minimally disturbed.
  11. I have the right to know a pain scale will be used to minimize causing me pain.
  12. I have the right to expect that all my caregivers will keep in mind as Horton said, “A person’s a person, no matter how small.”
  13. I have the right to be discharged home as soon as medically appropriate and not be kept in the Neonatal Intensive Care Unit one day longer because it may be financially beneficial to the hospital.
BEB Organic, Specialized Preemie Skincare
www.beborganic.com
Caring Essentials
www.caringessentials.org
Creative Therapy Consultants
www.creativetherapyconsultants.com
European Foundation for the Care of Infants
www.efcni.org
Graham’s Foundation
www.grahamsfoundation.org
Neonatal Therapists
www.neonataltherapists.com
NICU Training Module
www.otptinthenicu.com
Nurtured by Design
www.nurturedbydesign.com

Click a link to read the PDF article

Press & News

Our Work in the World

Get in Touch

Contact the Foundation

Michael Litten

Michael Litten

Founder, The Foundation for Premature Infants, Inc.

Thank you. Your message has been sent.
Something went wrong. Please email us directly.
×