“A person’s a person, no matter how small.”

Horton, Dr. Seuss

Our Mission

To advocate for the right of all premature infants to be cared for in a developmentally supportive manner.

Our Vision

To ensure that the premature infant Bill of Rights is the standard of care for all babies born prematurely, 24 hours per day, 365 days per year, on all shifts, in every Neonatal Intensive Care Unit throughout the world.


Did You Know?


Premature Infants are Born Each Year


Percentage of USA-born babies premature


Billions of dollars spent annually on preemies

Common Premature Infant Complications

BPD – Bronchopulmonary Dysplasia sometimes called chronic lung disease. A child is not born with BPD. It is something that develops as a consequence of prematurity and progressive lung inflammation.

IVH – Intraventricular Hemorrhage is a bleeding of the brain’s ventricular system. This type of hemorrhage is particularly common in infants, specially premature infants or those of very low birth weight (VLBW).

ROP – Retinopathy of Prematurity is a disease of the eye that affects prematurely born babies. All preterm babies are at risk for ROP, and very low birth weight (VLBW) is an additional risk factor. ROP can lead to blindness.

There was a 6% increase in babies born prematurely in the USA from 1998 – 2008.

Stevie Wonder suffers from Retinopathy of Prematurity

Brain at 24 weeks

Brain at 40 weeks


  • I have a right to expect that my caregivers’ practices reflect evidence-based best practice.
  • I have the right to be considered an active participant in my life capable of feeling and responding in all situations.
  • I will be cared for in a developmentally supportive way and a measurement tool will be used to ensure consistency of my care.
  • I have the right to an environment that protects my vision and hearing by maintaining sound and light levels within recommended levels.
  • I will drive my feeding schedule not doctors or nurses and a feeding readiness scale will be used to ensure that I am in control.
  • My family can visit me at any time.
  • My family can participate in all activities that involve me.
  • I can enjoy kangaroo care any time my family wants, emergency situations being the obvious exception.
  • My care will be standardized across all shifts by all clinical staff that interacts with me.
  • My care will be clustered so that my precious sleep cycles are minimally disturbed.
  • I have the right to know a pain scale will be used to minimize causing me pain.
  • I have the right to expect that all my caregivers will keep in mind as Horton said, “A person’s a person, no matter how small.”
  • I have the right to be discharged home as soon as medically appropriate and not be kept in the Neonatal Intensive Care Unit one day longer because it may be financially beneficial to the hospital.

BEB Organic, Specialized Preemie Skincare

Caring Essentials

Creative Therapy Consultants

European Foundation for the Care of Infants

Graham’s Foundation

Neonatal Therapists

NICU Training Module

Nurtured by Design

Preemie World

Zoe Rose

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